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约5,000例男性中就有1例血友病,主要是由于先天性缺乏第Ⅶ或第Ⅸ因子,患者若不进行适当治疗就会缩短生命,有的是进展性残疾,各种活动受限,异常痛苦。 1975年,全美建立了1,131个公共健康服务机构,并对全美血友病诊断治疗中心网提供资金。现有22个这样的地区医疗中心对所管辖范围的血友病患者提供综合服务。本文对11个医疗中心的医疗保健成果和费用进行分析,并将实施方案后五年的数据与以前的进行对比。每个医疗中心最基本的服务如下:1.高标准的凝血实验室;2.供应血友病患者所有血液成份的血库;3.训练一支具有各科医生参加的,治疗血友病的队伍;4.精神保健,遗传咨询和康复机构相结合;5.
About 1 out of 5,000 males have hemophilia, mainly due to congenital deficiency of factor VII or factor VIII. Patients will be shortened if they are not properly treated, some are progressively disabled, and activities are limited. . In 1975, the United States established 1,131 public health service agencies and provided funds for the National Hemophilia Diagnosis and Treatment Center Network. There are 22 such regional medical centers that provide comprehensive services for hemophilia patients under their jurisdiction. This article analyzes the health care outcomes and costs of the 11 medical centers and compares the data from the five years after the implementation of the plan with the previous ones. The basic services of each medical center are as follows: 1. High-standard coagulation laboratory; 2. Blood bank supplying all blood components of hemophilia; 3. Training a team with individual doctors to treat hemophilia 4. Mental health, genetic counseling and rehabilitation institutions combined;