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目的:了解乳腺癌病人信息接收水平及其影响因素。方法:采用横断面研究设计,对474例乳腺癌病人运用生命质量信息接收评价量表(quality of life questionnaire-information 25,QLQ-INFO25)进行问卷调查和分析。结果:乳腺癌病人信息接收总分为(41.2±11.8)分(满分100分),4个维度得分从高到低依次为医疗检测信息(42.4±23.0)、治疗信息(39.5±17.5)、疾病信息(39.5±19.6)和其他服务信息(28.8±17.3)。单条目中希望接收更多信息(82.3±38.2)得分最高。不同年龄(P=0.03)、不同文化程度(P<0.001)、不同治疗阶段(P<0.001)和不同确诊后病程(P=0.02)病人会影响其信息接收水平。结论:乳腺癌病人信息接收水平总体较低,且信息形式单一。年龄、文化程度、治疗阶段和确诊后病程是影响其信息接收水平的主要因素。本研究提示应重视和完善专业渠道信息资源的提供和支持。
Objective: To understand the level of breast cancer patients receiving information and its influencing factors. METHODS: A cross-sectional study design was used to investigate and analyze the 474 breast cancer patients using the QOLQQQQQQQQQQQQQQQQQQQQQQQQQQQQQQQQQQQQQQQQQQQQQQQQQQQQQQQJQQQQQQQQQQQQQJQQQQQQQQQJQQQQQQQQJQQQQQQQQQQQQJQQQQQQQQQRQRQRQRQRQRQRQRQRQRQRQPQPQRQPQPQPQPQPQPQPQPQPQPQPQPQPQPQPQPQPQPQPQPQPQPQPQPQPQPQPQPQPQPQPQPQPQPQPVQPQPQPV was measured in two groups. Results: The total score of receiving information of breast cancer patients was (41.2 ± 11.8) points (out of 100 points). The scores of the four dimensions from high to low were as follows: medical examination information (42.4 ± 23.0), treatment information (39.5 ± 17.5), disease Information (39.5 ± 19.6) and other service information (28.8 ± 17.3). A single entry is expected to receive more information (82.3 ± 38.2) with the highest score. Patients with different ages (P = 0.03), different education levels (P <0.001), different treatment stages (P <0.001) and different post-diagnosis durations (P = 0.02) affected their information receiving level. Conclusion: The receiving level of breast cancer patients is generally low, and the form of information is single. Age, education level, treatment stage and the course of illness after diagnosis are the main factors affecting the level of information reception. The research suggests that we should attach importance to and improve the provision and support of professional channel information resources.